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<\/a>\nThe film follows a typical day with Dee Reynolds<\/b> and her spouse and caregiver, Dan Reynolds<\/b>, as they navigate the realities of managing progressive symptoms, coordinating care, and confronting the emotional weight of uncertainty. Niemann-Pick disease is part of a group of rare diseases known as lysosomal storage disorders. It remains significantly under-recognized, with limited treatment options and no widely accessible cure. Through quiet, candid moments, the film reveals a life defined not just by limitations, but by resilience, connection, and determination.<\/p>
\n\u201cBy sharing their story, Dee and Dan are moving hearts and minds and building awareness for Niemann-Pick disease and rare diseases in general,\u201d said Laurie Turner, President, LT Consulting,<\/b> and a specialist in rare disease patient advocacy. \u201cThey remind us that behind every rare disease is a person, a family, and a community in need of visibility, understanding, and progress.\u201d<\/p>
\nDee & Dan<\/i> is now available to view for free,<\/a> with additional screenings planned for film festivals and special events in the future. The film underscores a critical reality: while rare diseases individually affect small populations, collectively they impact hundreds of millions of people worldwide, many of whom face delays in diagnosis, fragmented care, and limited therapeutic options.<\/p> \nDee & Dan<\/i> was produced in partnership with award-winning documentary team Take Care Productions<\/b><\/a> and director Jon Siskel<\/b>. The film was produced and underwritten by CG Life<\/b><\/a>, a specialized pharma agency built to address the unique challenges of bringing therapies for rare and hard-to-treat diseases to market.<\/p> \n\u201cToo often, rare diseases are reduced to unmet needs and clinical descriptions,\u201d said John Condne<\/b>, Producer and Owner, Take Care Productions<\/b>. \u201cWith Dee & Dan, we wanted to center their lived experience and highlight the courage, complexity, and humanity behind a later-in-life diagnosis of Niemann-Pick disease.\u201d<\/p> \n\u201cDee & Dan transcends traditional medical storytelling, presenting a vivid, personal narrative that underscores our shared humanity with those living with a rare disease,\u201d said David Ormesher, CEO, CG Life<\/b>. \u201cWhile every patient story is different, by bringing one family\u2019s story to the forefront, we seek to raise awareness, inspire empathy, and encourage greater investment in research, diagnosis, and patient support.\u201d<\/p> \nThis film is the first in a planned series of intimate profiles of individuals and families affected by rare diseases from 24\/364<\/b>. A second installment of the In the Light<\/i><\/b> series <\/i>went into production this month and is expected to be released later this year.<\/p> \nAbout 24\/364<\/b><\/p> \n24\/364 is a cultural brand platform created by CG Life to bring more visibility to the lived experience of rare diseases. Through storytelling, education, and experiences, the 24\/364 brand will drive awareness, connection, and action to keep rare disease at the forefront of health and social conversation, every day of the year. Learn more at 24364.life<\/a>.<\/p> \nAbout CG Life<\/b><\/p> \nFounded in 2003, CG Life is a specialized pharma agency built for the unique challenges of bringing therapies for rare and hard-to-treat diseases to market, where traditional commercialization models often fall short. CG Life partners with biopharma companies to navigate the complexity of rare disease commercial launches by combining deep scientific expertise, strategy-led activation of physician and patient communities, and results-driven engagement to support what's best for patients. The result is faster, more effective launches in markets where insight, creativity, and credibility determine success. Begin your journey at CGLife.com<\/a>.<\/p> \nMedia Contact:<\/b><\/p>